{
  "data": {
    "id": "stat_H8KCXMV3MKWYGTF4N2V0M9WZNA",
    "url": "https://statorigin.org/stat/stat_H8KCXMV3MKWYGTF4N2V0M9WZNA",
    "indicator": {
      "slug": "patient-organizations-operating",
      "name": "Patient organizations operating",
      "definition": "Total count of patient organizations currently active and operating."
    },
    "industry": [
      {
        "slug": "healthcare",
        "name": "Human health activities",
        "isic": "Q86",
        "is_primary": true
      }
    ],
    "region": {
      "code": "US",
      "name": "United States",
      "type": "country"
    },
    "period": {
      "start": "2023-10-05",
      "end": "2023-10-05",
      "type": "point"
    },
    "value": 3327,
    "value_text": "3,327",
    "unit": "count",
    "currency": null,
    "scale": "1",
    "value_type": "actual",
    "source": {
      "org": "IQVIA Institute",
      "org_short_name": "IQVIA",
      "org_url": "https://www.iqvia.com",
      "org_tier": 3,
      "document_title": "Supporting patients through research collaboration",
      "document_url": "https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration",
      "document_type": "press_release",
      "locator": "Other findings",
      "quote": "There are 3,327 patient organizations currently operating in the United States, with approximately 593 or 18% focusing on rare diseases.",
      "evidence_type": "quote",
      "dataset_query": null,
      "dataset_evidence": null,
      "published_date": null,
      "accessed_at": "2026-09-16",
      "license": "see-source",
      "url_status": "ok",
      "self_reported": false
    },
    "verification": "verified",
    "verified_by": "pipeline:quote-verified-v2",
    "verified_at": "2026-09-28T08:57:19.930Z",
    "confidence": 0.9,
    "is_secondhand": false,
    "supersedes": null,
    "superseded_by": null,
    "is_current": true,
    "citation": {
      "apa": "IQVIA Institute. (2023). Supporting patients through research collaboration. Retrieved September 16, 2026, from https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration. Via StatOrigin, https://statorigin.org/stat/stat_H8KCXMV3MKWYGTF4N2V0M9WZNA",
      "bibtex": "@misc{iqvia2023patientm9wzna,\n  author       = {{IQVIA Institute}},\n  title        = {Supporting patients through research collaboration},\n  year         = {2023},\n  howpublished = {StatOrigin, https://statorigin.org},\n  url          = {https://statorigin.org/stat/stat_H8KCXMV3MKWYGTF4N2V0M9WZNA},\n  note         = {Original source: https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration. Accessed September 16, 2026.}\n}"
    },
    "updated_at": "2026-09-28T09:00:11.515Z",
    "contested_by": [],
    "related": []
  },
  "meta": {
    "attribution": "Data from StatOrigin (https://statorigin.org), CC BY 4.0. Attribution required.",
    "license": "https://creativecommons.org/licenses/by/4.0/",
    "docs": "https://statorigin.org/docs/api",
    "total": 1
  }
}