Share of patient organizations focused on rare diseases
RecordSTO-BQQX6TZQPV-B81MG4VV6G-14HDE9
United States · as of 5 Oct 2023
Share of patient organizations focused on rare diseases in the United States was 18% as of 5 October 2023 (IQVIA).
- Publisher
- IQVIA
- Authority tier
- T3 Research
- Locator
- Other findings
- Retrieved
- 16 Sep 2026
- Status
- Verified
What the source says
There are 3,327 patient organizations currently operating in the United States, with approximately 593 or 18% focusing on rare diseases.
Checked: the figure 18%is stated in this passage. If it does not match, the extraction is wrong and we want to know.
Cite this figure
APA
IQVIA Institute. (2023). Supporting patients through research collaboration. Retrieved September 16, 2026, from https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration. Via StatOrigin, https://statorigin.org/stat/stat_BQQX6TZQPVB81MG4VV6G14HDE9
Other formats: MLA, Chicago, BibTeX
- MLA
- IQVIA Institute. "Supporting patients through research collaboration." 2023, https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration. Accessed 16 Sept. 2026 via StatOrigin, https://statorigin.org/stat/stat_BQQX6TZQPVB81MG4VV6G14HDE9.
- Chicago
- IQVIA Institute. "Supporting patients through research collaboration." 2023. https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration. Accessed September 16, 2026. Cited from StatOrigin, https://statorigin.org/stat/stat_BQQX6TZQPVB81MG4VV6G14HDE9.
- BibTeX
- @misc{iqvia2023share14hde9, author = {{IQVIA Institute}}, title = {Supporting patients through research collaboration}, year = {2023}, howpublished = {StatOrigin, https://statorigin.org}, url = {https://statorigin.org/stat/stat_BQQX6TZQPVB81MG4VV6G14HDE9}, note = {Original source: https://www.iqvia.com/insights/the-iqvia-institute/reports-and-publications/reports/supporting-patients-through-research-collaboration. Accessed September 16, 2026.} }
Data published under CC BY 4.0. The citation credits the original publisher and links to this permanent record.
Provenance and verification
Everything needed to check this number yourself, without taking our word for it.
Primary source
- Publisher
- IQVIA Institute · homepage ↗
- Authority tier
- Tier 3 · Research and companies
- Report
- Supporting patients through research collaboration
- Type
- Press release
- Published
- —
- Locator
- Other findings
- Retrieved
- 16 September 2026
- Link status
- Reachable (HTTP 200)
- Report licence
- See source
Verification
- Status
- Verified
- Review protocol
- pipeline:quote-verified-v2
- Checked on
- 28 September 2026
- Last revision
- 28 September 2026
- Permanent URL
- /stat/stat_BQQX6TZQPVB81MG4VV6G14HDE9